The DARWIN EU® Data Network

Data Partners
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Data Sources
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Countries
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Persons
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European
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US
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Country Data Partner Data Source Type #Persons Data Collection Start
Belgium BCR Belgian Cancer Registry Disease Registry 211,000 2014
IQVIA LPD Belgium IQVIA Longitudinal Patient Database Belgium GP 1,046,800 2015
UZA Universitair Ziekenhuis Antwerpen Structured Data Hospital 124,900 2021
Croatia NAJS Croatian National Public Health Information System Claims 4,835,800 2015
Denmark DK-DHR Danish Data Health Registries Population Registry 8,593,400 1995
Estonia EBB Estonian Biobank Biobank 212,300 2004
Finland FinOMOP Auria Clinical Informatics Hospital 931,700 2004
Finnish Care Register for Health Care Population Registry 6,789,700 2011
Hospital District of Helsinki and Uusimaa Hospital 2,954,500 2005
Tampere University Hospital patient cohort Hospital 861,700 2007
France APHM Assistance publique Hôpitaux de Marseille Hospital 2,471,500 2014
BNDMR French National Registry of Rare Diseases (Banque Nationale de Données Maladies Rares) Disease Registry 923,600 2007
CDW Bordeaux Clinical Data Warehouse of Bordeaux University Hospital Hospital 2,474,800 2010
HDH Système National des Données de Santé Claims 10,631,600 2015
Germany IQVIA DA Germany IQVIA Disease Analyzer Germany GP 43,691,700 1992
InGef RDB InGef Research Database Claims 10,667,200 2015
UMD University Medicine Dresden Database Hospital 624,700 2018
Greece PGH Papageorgiou General Hospital Hospital 1,486,700 1999
Hungary SUCD Semmelweis University Clinical Data Hospital 2,648,200 2018
Italy POLIMI Research Repository @Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico Hospital 1,716,300 2011
Pedianet Pedianet Disease Registry 532,700 2004
Lithuania LDH Lithuanian Digital Health Platform Claims 3,015,900 2015
Netherlands IPCI Integrated Primary Care Information GP 3,104,400 2006
NCR Netherlands Cancer Registry Disease Registry 2,761,500 1993
Norway CRN Cancer Registry Norway Disease Registry 1,248,100 1960
NLHR Norwegian Linked Health Registry Data - Perinatal and Pregnancy Disease Registry 1,939,900 2006
Norwegian Linked Health Registry data Population Registry 6,114,200 2008
Poland IPCZD Children's Memorial Health Institute Database Hospital 1,020,100 2020
Portugal EMDB Egas Moniz Health Alliance database - Unidade Local de Saúde da Região de Aveiro Hospital 514,100 1997
Egas Moniz Health Alliance database - Unidade Local de Saúde de Entre Douro e Vouga Hospital 575,100 1999
Egas Moniz Health Alliance database - Unidade Local de Saúde de Gaia e Espinho Hospital 728,200 2004
IPO Porto - RIC Instituto Português de Oncologia do Porto - Repositório Integrado do Conhecimento Disease Registry 372,900 2010
ULSM-RT Unidade Local de Saúde de Matosinhos Realtime Database Hospital 620,000 2001
Spain BIFAP Pharmacoepidemiological Research Database for Public Health Systems Hospital + GP 30,311,100 2002
H12O Hospital Universitario 12 de Octubre Hospital 2,288,300 2012
HUVM Hospital Universitario Virgen Macarena Hospital + GP 1,177,600 2012
IMASIS Institut Municipal Assistència Sanitària Information System Hospital 1,825,000 1990
PRISIB Platafoma de Recerca en Informació Sanitària de les Illes Balears Hospital + GP 1,894,300 2011
SIDIAP The Information System for Research in Primary Care GP 8,894,200 2006
VID Valencia Health System Integrated Dataset GP 5,998,300 2018
Sweden HI-SPEED Health Impact - Swedish Population Evidence Enabling Data-linkage Population Registry 12,057,000 2015
United Kingdom CPRD AURUM Clinical Practice Research Datalink Aurum GP 52,596,300 1995
Clinical Practice Research Datalink Aurum with Hospital Episode Statistics Admitted Patient Care Hospital + GP 45,999,300 1995
CPRD GOLD Clinical Practice Research Datalink GOLD GP 17,649,100 1987
NNRD National Neonatal Research Database Disease Registry 1,584,900 2007
UKBB UK BioBank Biobank 502,000 1997
United States IQVIA US IQVIA US - Oncology EMR Disease Registry 1,879,500 2010
IQVIA US - Ambulatory EMR GP 106,678,500 2006
IQVIA US - PharMetrics Plus Hospital 120,146,300 2016

†CPRD AURUM HES APC is not counted towards the total person count as it is a subset of the CPRD AURUM data source.


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